Maryland Financial Resources for Parents Dealing With a Birth Injury

SPECIAL NEEDS TRUSTS
A special needs trust is set up for a person with special needs (the beneficiary) to supplement any government benefits the person receives. A special needs trust is designed to manage assets for that person’s benefit while not compromising access to important government benefits. The trust must be created by the beneficiary’s parent or grandparent, or by a court, but it cannot be created by the beneficiary, even though his assets are going to fund the trust. While the beneficiary is living, the funds in the trust are used for his benefit. When he dies, any assets remaining in the trust are used to reimburse the government for the cost of his medical care. These trusts are especially useful for people receiving SSI and/or medicaid who come into large amounts of money, such as a law suit settlement. The trust allows the beneficiary to retain his benefits while still being able to use his own funds when necessary.

POOLED SPECIAL NEEDS TRUSTS
These trusts pool the resources of many disabled beneficiaries, and those resources are managed by a non-profit association. There are times when the amount of money available to fund the trust is not enough for an individual trust to make sense. In those instances we can direct our clients into these trusts, which provide the same asset protections and trust services of an individual trust, but spread the administration costs over a larger participant group. In addition, at the beneficiary’s death the state does not have to be repaid for its Medicaid expenses on her behalf as long as the funds are retained in the trust for the benefit of other disabled beneficiaries.

For more information on Pooled Special Needs Trusts please visit: www.shared-horizons.org

SPECIAL NEEDS HOME MODIFICATIONS
Homes can often be modified and made more accessible with some minor structural changes. We work with contractors who have specific experience in creating adaptive and accessible living spaces for our disabled clients.

You can also ask your child’s physical or occupational therapist for suggestions of adaptive equipment and modifications. There are sometimes inexpensive and creative solutions to improve accessibility. As you identify needed modifications, remember to think about your child’s future needs. As a child grows, will the bathroom be large enough and will the bedroom accommodate a hospital bed? Will you need a dedicated room for therapy? Some popular examples of home modifications include:

  • Constructing ramps
  • Widening doors and changing from knobs to levers
  • Lowering countertops
  • Installing grab bars, shower seats and walk-in bathtubs
  • Installing a stair glide or elevator

For more information about accessible and adaptive living please visit:www.mychildwithoutlimits.org

MEDICAL CARE AND SERVICES COORDINATION
Many of our clients have complex medical care and services needs. The time spent on ensuring appoints are kept and the right care and services are received can be overwhelming for their family members. Then, there is the added stress of making sure the right insurance and government entities pay for the care. To help, we direct our clients to organizations that provide care management for people with the most complex health, social and disability needs. Managed care case management is targeted care coordination and innovative services among managed care plan participants whose care needs are over and above those that are typical of most participants. Care needs may cover the spectrum of health and safety concerns related to trauma, rare diagnoses, catastrophic needs, or chronic illnesses that result in greater use of health care and therapeutic services.

For more information about how medical care coordination services can help, please visit: www.coordinatingcenter.org

VOCATIONAL REHABILITATION AND ANALYSIS
Vocational rehabilitation is a process which enables persons with functional, psychological, developmental, cognitive and emotional impairments or health disabilities to overcome barriers to accessing, maintaining or returning to employment or other useful occupation.

Vocational rehabilitation can include:

  • assessment, appraisal, program evaluation and research.
  • goal setting and intervention planning.
  • provision of health advice and promotion, in support of returning to work.
  • support for self-management of health conditions.
  • making adjustments to the medical and psychological impact of a disability.
  • case management, referral, and service co-ordination.
  • psychosocial interventions.
  • career counseling, job analysis, job development, and placement services.
  • functional and work capacity evaluations

We work with a number of professionals in this field who are dedicated to finding ways our clients can grow and prosper as active contributing members of the community.

For more information about vocational rehabilitation services, please visit:www.dors.maryland.gov or www.rehabpro.org

MEDICAID REM PROGRAM
The Rare and Expensive Case Management (REM) Program is a case managed fee for service program for individuals participating in Maryland Medical Assistance.The purpose of the program is to provide the integrated coordination of services for people with specialized health care needs. For purposes of the program, these needs have been defined as rare in occurrence and expensive to treat.

Many of our clients are eligible because of their specialized health care needs exceed the scope of services provided by Medicaid managed care organizations. Participating individuals have eligibility for all Medicaid plan covered services as well as an array of optional services.

Basic services under the state plan include medically necessary:

  • Physician visits
  • Inpatient hospital services
  • Pharmacy
  • Home health services
  • Radiology and lab services
  • Durable medical equipment
  • Disposable medical supplies
  • Therapies, including PT/OT/SL/Assistive Technology

Possible optional services may include medically necessary:

  • Private duty nursing and nursing assistance
  • Nutritional supplements
  • Dental care